I’ve been on 3 holidays since my health got to a point where I need assistance and I’ve learnt lessons from each one so here’s what I’ve figured out. 1 – Pick your mode of transport carefully, there are issues with all so figure out what’s best for you. I really didn’t like flying with… Continue reading How to plan a holiday with a chronic illness
Yesterday I experienced the looks and sense of judgement that so many of my “spoonie” friends tell me that they have to deal with on a daily basis and it was not fun! I’m staying in a hotel for a few days for a break and booked it through national holidays (a bus trip) but… Continue reading My first bad experience of abuse and invisible illness
I’m feeling very impressed with the social care of Gateshead and Sunderland councils today so wanted to tell you about it. About 2 years ago I discovered that local councils run a service to provide equipment and make adaptations to your home to help you manage with disabilities. I contacted Gateshead council and they sent… Continue reading Positive experience with my local council!
Diversifying my business over the past couple of months has been really tough. I’m putting lots of my limited time and energy into it because I want to be able to support myself financially as well as supporting other people with invisible disabilities and raising awareness. It’s important to me and I want to get… Continue reading Goals to do what I love!
I hate it when I’ve had an ok day health wise, but a FAB day life wise like today…I’ve got loads of ideas, loads of things I want to do, loads of people I want to speak to and tell about what’s going on, but now it’s past 6pm and I don’t work anymore.I’m struggling… Continue reading Can we beat anger and guilt together?
This afternoon after paying for a car wash I parked up ready to go through and it wasn’t working…went back into the garage to see if they could fix it, there was only one lady working who said she’d just got in and didn’t know it was broken, sorry, she’d have to refund my money.… Continue reading Rant about extra spoons!